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Information & Advice For Arrhythmia Patients

Do you have an arrhythmia? Do you have SVT / PSVT? Do you have an ICD/S-ICD? Would you like to learn more about your condition?

If you have answered YES to any or all of these questions, then join us and hundreds of other patients at Arrhythmia Alliance Patients Day 2019.

World renowned medical experts will be sharing their knowledge and talking about up to date research. Learn more about your condition, how you can better manage it and what treatment options are available to you. Patients Day gives you the opportunity to ask questions and discuss your concerns with doctors and to meet other patients in a similar situation to you in a relaxed, comfortable environment.

This year, we have added new topics and invited new speakers, so even if you have attended Patients Day in the past, you will still learn something new.

If you or someone close to you lives with an arrhythmia, we are confident you will experience a profound sense of relief when you attend this year's Arrhythmia Alliance Patients Day.

Based on your feedback and to hold last year's price, tea and coffee will be available throughout the day for you to purchase. Complimentary lunch which will include water will be provided. Water will also be provided in all meeting rooms.

Online registration is now closed - There are still places availiable on the day - Registration opens at 10:00 Sunday 6th October - Please make your way to the 'New Registrations booth' - Cost £35. 

What past attendees have found useful about attending Arrhythmia Alliance Patients Day:

“Hearing the latest research and to be informed about the range of treatments used.  It was helpful to meet other patients to be able to gauge and be assured regarding the severity and suitability of treatment our daughter is receiving.”

“Meeting other parents with children with CPVT. Finding out more about the Arrhythmia Alliance. Seeing our daughter’s consultant explaining CPVT in more detail, feeling reassured by the treatment our daughter has received so far.”

“Have attended for many years and always very satisfied when day finished.”

“Thank you for holding this. I don’t feel so alone”

Chair Dr Kim Rajappan, Consultant Cardiologist - Oxford UK

11.00

Welcome - Dr Kim Rajappan, Consultant Cardiologist - Oxford UK

11.05

Am I at risk of heart failure and what are my options? - Dr Vishal Luther, Cardiology SpR/Research Fellow - London UK

11.20

Relationships and my arrhythmia - Jean Maloney, Arrhythmia Nurse Specialist - Sheffield UK

11.40 Patient experience - Mr Joe Sievier, Patient - Stratford Upon Avon UK
12.00 S-ICD versus ICD why does it matter - Mr James Fouhy, Product Performance Engineer - Clonmel IR

12.20

Debate: Treatment options for my arrhythmia: Drugs or devices? - Helen Eftekhari, Arrhythmia Nurse - Coventry UK & Prof Faizel Osman, Consultant Cardiologist - Coventry UK

12.45 

LUNCH

Chair  
13.30  Anxiety management for patient and carers with and ICD - Dr Stuart Harris, Consultant Cardiologist & Electrophysiologist - Basildon UK
13.45 Cardiomyopathy what does it mean and what options are available - Stephanie Cruickshank, Arrhythmia Nurse Practitioner - Surrey UK
14.00 The role of the ICD in heart failure patients - Jean Maloney, Arrhythmia Nurse Specialist - Sheffield UK
14.15 Lifestyle advice for people with an ICD. Do's and don’ts, cans and can'ts - Helen Eftekhari, Arrhythmia Nurse - Coventry UK
15.00 Break
Chair Dr Vishal Luther, Cardiology SpR/Research Fellow - London UK
15.15 Venricular Tachycardia vs Ventricular Fibrillation. What are they and how to treat them - Dr Alistair Slade, Consultant Cardiologist - Cornwall UK
15.30 Left Bundle Branch Block - Dr Mark Tanner, Consultant Cardiologist - Chichester UK
15.45 Patient Speaker - Lucy Marriott 
16.00 Heart block - what does it mean and what are my options? - Dr Vishal Luther, Cardiology SpR/Research Fellow - London UK
16.15 Inappropriate Sinus Tachycardia - what is it and what can be done? - Prof Faizel Osman, Consultant Cardiologist - Coventry UK
16.30 Long QT - What are my options? - Prof Elijah Behr, Senior Lecturer & Honorary Consultant Cardiologist - London UK
17.00 Close

In the afternoon there is the opportunity to sit in on one of two breakout sessions; CPVT or SVT for 90 minutes or alternatively you can stay sat in on the main agenda.

  CPVT Session                                                                
Chair Dr Jan Till, Consultant Paediatric Electrophysiologist - London UK
13.30 Patient Speaker - Ellie Nicholls - Essex UK
13.45 CPVT Genetics - Dr Leonie Wong, Consultant Cardiologist - London UK
14.00 Living with CPVT - Living with an ICD - Catherine Renwick, Nurse Consultant - London UK
14.15 Living with CPVT - How can I monitor my heart rate looking at technology that might help - Dr Jan Till, Consultant Paediatric Electrophysiologist - London UK
14.30 Living with CPVT - what should I say to school / nursery / other carers? - Ms Lucy Green, Paediatric Clinical Nurse Specialist - London UK
14.45 Living with CPVT - Whats new in CPVT research - Dr Jan Till, Consultant Paediatric Electrophysiologist - London UK
15.00 Break
  SVT Session               
Chair Dr Francis Murgatroyd, Consultant Cardiologist - London, UK
13.30 Ablation for SVT - Dr Francis Murgatroyd, Consultant Cardiologist - London, UK
13.45

What is SVT and how do I live with it? - Dr Boon Lim, Consultant Cardiologist - London UK

14.00 What treatment options are available? - Prof Faizel Osman, Consultant Cardiologist - Coventry UK
14.15 Patient Speaker - Ms Helen Bradley, Patient - Bewdley UK
14.30 SVT - do not let your GP dismiss it - Dr Matt Fay, GP - Bradford UK
14.45 Anxiety feeding SVT feeding anxiety and how to cope - Dr Matt Fay, GP - Bradford UK
15.00 Break


Thank you to Total Merchandise for kindly providing the pens and notepads for Patients Day.
 

The role of the ICD in heart failure patients - Jean Maloney, Arrhythmia Nurse Specialist - Sheffield UK


Get in touch for more help and information

+44 (0) 1789 867 501info@heartrhythmalliance.org

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