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Arrhythmia Alliance News & Events

Remote Monitoring For Patients

In case of an emergency, call 999. If you have concerns about your heart rhythm or device,

contact your cardiac clinic. For support and information:

Arrhythmia Alliance - 01789 867501 - AF Association - 01789 867502 - STARS- 01789 867503

info@heartrhythmalliance.org

To download our Remote Monitoring Information booklet, click here

We are very much aware of the pressure the NHS are under in these unprecedented times.  Arrhythmia Alliance, AF Association and STARS have more than tripled the number of calls to our helpline, e mails and forums from concerned patients and carers.  Appointments are being cancelled/postponed plus they have concerns as to whether they might be at high risk of COVID-19.

We have been exploring ways that we may be able to alleviate some of the pressure on our already overstretched NHS services and also the safety of patients.

We are aware that many clinics have already started to increase remote monitoring services in order to keep patients safely managed at home. After discussions with leading clinicians and industry, Arrhythmia Alliance would like to offer, for those that may need it, support and a service to alleviate the work involved for remote monitoring.

The majority of high-power devices are already remotely managed, this may vary from centre to centre. It is predicted the largest demand for additional remote follow up will be for Bradycardia and CRT-P patients. Understandably there are insufficient monitors & physiologist resource to meet this demand instantly. Leading EP’s suggest the following recommendations to help with patient prioritisation.

Patients who fall into the following two criteria should be considered priority for remote monitoring:

1. Devices at RRT/EOL with no underlying rhythm

2. Patients on an increased follow up schedule e.g. more than one follow up scheduled per year (as this would indicate there is reason to more closely monitor them without increasing their risk of COVID-19 by bringing them into the hospital environment)

Consideration for patients identified by the government as high risk for COVID (1.5 million patients who received a government notification week beginning 23rd March) 

Following individual and collaborative discussions industry have offered assistance, working with Arrhythmia Alliance.  Some industry partners are able to provide shipping of remote monitors direct to the patient, providing a Helpline of ex-NHS physiologists, now employed by industry, who can provide guidance on how to set up their remote monitors and ongoing technical support.  Currently not all partners are available to provide these services, however each and every partner is looking into how they can help on an individual hospital basis.

Arrythmia Alliance and its sister charities are here to act as the point of contact for patient enquires to provide support for concerned patients and to provide signposting service to appropriate device manufactures for technical questions relating to remote monitoring.

Arrhythmia Alliance - 01789 867501 - AF Association - 01789 867502 - STARS- 01789 867503

Arrhythmia Alliance has also contacted the Chair of our All Party Parliamentary Group, Barry Sheerman MP who has immediately written to Matt Hancock MP, Health Minister to make him aware of this key service which a charity is offering to help save costs, time and importantly lives be reducing the number of patients visiting hospitals.

Here are some example patient flows –

1. Patient contacts Arrhythmia Alliance, AF Association or STARS regarding questions, support or information (e mail: info@heartrhythmalliance.org)

A-A encourage the patient to contact the manufacturer directly for remote monitoring technical related enquires:

  1. Medtronic – Be Connected                                          0 800 38 17 00
  2. Abbott – Merlin                                                             0800 389 2714 
  3. Boston Scientific – Latitude                                          0800 678 1644
  4. Biotronik                                                                        01869 362107
  5. Microport (formally Sorin)                                              0800 026 0213

2. Patients who contact the hospital regarding remote monitoring or seeking information and support are directed to Arrhythmia Alliance (01789 867501 - info@heartrhythmalliance.org) who will deal with enquiry or forward to appropriate manufacturer if technical.

3. Any specific clinical issues will be escalated directly to the hospital clinic.

4. Both Arrhythmia Alliance and each industry partner will abide by strict confidentiality and only share the information with the patients clinic and with direct consent from the patient as per GDPR guidelines.

We have the support of leading clinicians, industry and our All Party Parliamentary Group. We very much hope this offer of support will help individual clinics and importantly worried, anxious patients during this critical time.

We have also arranged that ECG mobile monitoring, patches and holters can be shipped direct to patients to alleviate pressure on NHS clinics. Click here

On behalf of Arrhythmia Alliance / AF Association / STARS and all industry we would like to thank all NHS staff for their dedication and commitment.

 


Get in touch for more help and information

+44 (0) 1789 867 501info@heartrhythmalliance.org

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